Hark’s Mission
Hark is on a mission to share the real story of ALS and to provide a network of compassionate resources for families.
Our Vision
Change the way the world views ALS. Create a courageous legacy of support for families.
What We Do
HARK provides assistance to alleviate the financial burdens faced by families battling ALS. We offer support in many ways including:
- Purchased and donated a handicap accessible van to a pALS
- Purchasing equipment not covered by insurance
- Paying travel expenses for pALS to visit family or attend an important family event they would not otherwise be able to afford
- Visit communities across the country sharing Hope on the Horizon increasing awareness of ALS and benefitting a local ALS family
- Provide financial assistance for household expenses
- Assisting families with children during the holidays
- Provide assistance with home modifications
The Hark Legacy
Our Dad taught each of us, not by what he said, but by what he did, to be the best person we can be, to share the gifts that God gave us, to help others at every opportunity we’re given, to make a difference in someone’s life and to face life’s challenges with courage and dignity.
When he was diagnosed, a year and after his symptoms started, the doctor called and said, “I believe your father has ALS and I wouldn’t wish it on my worst enemy.” Our first thought was, that’s not something you want to hear a doctor say! Our second thought was, how bad can it be? What we soon learned was, it could be devastating! Slowly our father lost the ability to speak, swallow, talk, walk and breathe without help. We came together as a family, as we always do, to take care of him yet, even with 7 of us, it was difficult and, at times, we needed help, but we each took on a role and navigated our way through.
After he passed away I often thought, “What would I have done if I didn’t have my family, what if it was just me and I had to go through that myself, how would I ever have been able to manage? I would have been totally overwhelmed with no where to turn for help.”
Getting a diagnosis of ALS is frightening, you feel alone, you feel like no one understands, and there’s no hope. You don’t know where to turn, you’re embarking on a journey through a dark tunnel and you need someone to turn on that little flicker of light and say, “I’ve taken this journey, I’ll help you navigate your way through, I’ll be there with you every step of the way.”
Hark’s family is that Flickering Light of Hope.